More tests???

So, recently I had a capsule test...that fun one where u swallow a big capsule and wear a very heavy belt and monitor. The capsule takes pictures as it goes thru your digestive tract and transmits them to the monitor. Takes 8 hours.

I got a call a few days later and the girl told me it was fine. But the Dr she mentioned I didn't recognize. So, OK. I get a call today and the test failed. The capsule didn't go where they wanted it to. How does that happen? My crohn's is at theend of my small intestine - did it not go thru? is it still in there? Or did it take longer than 8 hours to get there?

And was the first call to the wrong patient? wtf?

Now I have to have it again - but this time my doc is going to go in and place it where she wants. Endoscopically. wonderful. another one.

So, someone has to drive me, cause I will have to be knocked out. Shit.

I mean , I'm not doing too bad. My biggest problemis I don't absorb food or vitamins, so I have to take liquid vitamins and B-12 shots. If I keep my levels up I feel so-so. Fatigue is a problem and so is joint pain. I eat very little since it hurts to eat too much. I'm trying to find liquid food or nutrition. That would help. And I am trying the SCD diet. Works well. Alot less pain. And I found that over-chewing my food helps immensely. Although it takes getting used to.

I still have diarrhea - every morning for the last 20 months. But not all day long. I'm lucky. But I know my body works well on a routine - get up at the same time, and it will react the same every day.

Every now and then I take prednisone for a week or so for the joint pain and the rashes, and it stops for anywhere from 2 to 6 months. whew.

And I am one of those with seasonal trigger - always starts early spring, like in March. so, now that I know, I can get ahead of it - I hope.