capsule failure- houston we have a problem....

OK, so my capsule test failed because the damn thing never left my stomach, even after 8 hours! wtf. That's why I have to have it placed now, with an endoscopy. Oh craptacular.

And of course my insurance company doesn't want this - oh big surprise. Do they ever want to pay for anything?

So, now I wait, with no meds for anything since they will interfere with the results. I wait for some pencil-pusher to decide if this is necessary.......while I suffer.

What do I say to insurance pencil-pushers? Karma will bite u in the ass some day. And they know it.

Brave Crohners

Well, I have kept searching and have found many more blogs by crohn-sufferrers and UC sufferrers. I've listed them here on the right of my blog. Most are women, and young too, and brave in my opinion. I'm still searching, and as I find more I will list them, so others searching can read these amazing stories.

I'm not sure I could face the world the way some of these gals do, with an ileostomy or colostomy bag. That scares me, actually. I'm trying everything I can to not have that happen.

Kudos to them.

More tests???

So, recently I had a capsule test...that fun one where u swallow a big capsule and wear a very heavy belt and monitor. The capsule takes pictures as it goes thru your digestive tract and transmits them to the monitor. Takes 8 hours.

I got a call a few days later and the girl told me it was fine. But the Dr she mentioned I didn't recognize. So, OK. I get a call today and the test failed. The capsule didn't go where they wanted it to. How does that happen? My crohn's is at theend of my small intestine - did it not go thru? is it still in there? Or did it take longer than 8 hours to get there?

And was the first call to the wrong patient? wtf?

Now I have to have it again - but this time my doc is going to go in and place it where she wants. Endoscopically. wonderful. another one.

So, someone has to drive me, cause I will have to be knocked out. Shit.

I mean , I'm not doing too bad. My biggest problemis I don't absorb food or vitamins, so I have to take liquid vitamins and B-12 shots. If I keep my levels up I feel so-so. Fatigue is a problem and so is joint pain. I eat very little since it hurts to eat too much. I'm trying to find liquid food or nutrition. That would help. And I am trying the SCD diet. Works well. Alot less pain. And I found that over-chewing my food helps immensely. Although it takes getting used to.

I still have diarrhea - every morning for the last 20 months. But not all day long. I'm lucky. But I know my body works well on a routine - get up at the same time, and it will react the same every day.

Every now and then I take prednisone for a week or so for the joint pain and the rashes, and it stops for anywhere from 2 to 6 months. whew.

And I am one of those with seasonal trigger - always starts early spring, like in March. so, now that I know, I can get ahead of it - I hope.

Fart humor

Some cat-fart humor to follow the previous post.........

Crohn's sucks

Yes it certainly does. But worse sometimes, is being sick for years, knowing something is very wrong, but not knowing what it is.
That was me. I knew, my Drs knew, we all knew. But what was it?

In my twenties it was vague, came & went. Abdominal pain, fatigue, and joint pain.

Then in the 90's when I was in my 30's, the nite sweats started, and more gut pain. And now it's bad.
When i finally got my diagnoses, I looked for crohns blogs, and many were no longer updated, years old. Others were more on UC, which is similar. But mine is not in the colon, which is why it was hard to find - it is above the ileum. Real hard to see - until I had a CT Enterography. there it was.

So I'm writing, so if others are looking, we can connect - share our crap. ;-)